Does anyone know where I can buy a copy of this Movie. I have looked and looked. There is a camp in NY for children with this disease (XP). I have friends who have gone and volunteered at it. This movie appears to be the best yet portraying the disease and the problems family's have with it.
Hi i know it was 3 years ago when you wrote this, but i was just searching and came upon this movie. i remember this movie, i loved it. I did a search and there is one person that has it but at amazon, but it is used and is $36 and is only on VHS, but just thought i would let you know incase you never found it, as it was never released on dvd by the look of it. Also try ioffer.com they are a site that have a lot of movies, people have put onto disc from either videos or the usa channels.
kerry